Fibrodysplasia Ossificans Progressiva (FOP)
Jeannie L Peeper once said, “We are not Stone people. We are people living with a disorder. We will fight till the end and never give up until we win. We will live to tell our story about FOP to inspire others on this fight! FOP will not win over us. We will win over FOP”. After reading that quote I had to write my paper about Fibrodysplasia Ossificans Progressiva. After watching so many inspiring and emotional videos about this disease I wanted to share my thoughts and information I accumulated while watching the videos on YouTube. In this essay, I will talk about the Fibrodysplasia Ossificans Progressiva disease and how it effects it patients.
What is Fibrodysplasia Ossificans Progressiva? Also known as FOP, is a disorder in which muscle tissue and connective tissue such as tendons and ligaments are gradually replaced by bone, forming bone outside the skeleton that constrains movement. This process becomes notice during early childhood, starting with the neck and moving down to the limbs. The Extra bone formation causes progressive loss of moving around as the patients joints become affected. They also will have Inability to fully open the mouth, which causes difficulty in speaking and eating. They may also have difficulty breathing as a result of extra bone formation around the rib cage that restricts expansion of the lungs. If the FOP patient experiences any trauma to the muscles such as a fall may trigger episodes of muscle swelling and inflammation followed by more visits to the doctor. Patients with FOP are usually born with very big toes. This abnormality of the big toes is a characteristic feature that helps to distinguish this disorder from other bone and muscle problems. Other FOP patients may be born with short thumbs and other skeletal abnormalities. There is no cure for FOP. Attempts to surgically remove the bone might result in more robust bone growth. There...